My Son's Battered Lighthouse


June 15, 2013

My son called me last night from prison.  Yelling and screaming underscored his hollow, shaken, breathless tone.  He was not himself.  It was not his typical, yet forced, chipper voice that I heard on the other end of the line.  He had called to report that there had been a stabbing that day.  He had seen it close up.  "So much blood," he said.  "So much blood, Mom,"  and he shuddered with fear.

And I shuddered too.  Lighthouse.  Be the lighthouse.

Whenever he calls, I must be the lighthouse in the dark storm of his incarceration.  I don't let my voice quiver or weaken in fear.  I don't let him hear my terror, my panic, my anxiety.  I only allow myself to speak in the "mom voice" he knows.  The one with all the answers.  The one who loves him unconditionally, without judgment.  The one with strength and light.

I am the lighthouse for my son in the blackest of his hours.  He knows he can call me and I will illuminate his darkest night.

"You're OK, right?  You weren't hurt?"

"No, I'm fine, Mom."

"Well, did you know the guys?"

"Not really."

"OK.  So these guys are all dangerous.  Just stay to yourself.  Keep your eyes open and be kind to everyone.  You're going to be OK."

"Yeah, I know Mom. Thanks."

And with those quick words, my son's anxiety decreased and his volume increased.  The breathlessness dissipated and he began to sound like himself again.

*SIXTY SECOND WARNING*  This means our conversation must end.  So we said our quick "I love yous" and hung up.

As I turned off my phone, my hand was shaking.  A shortness of breath and quickened heartbeat caught my attention.  I have been battered by another wave of pain, but I still stand.

I am his lighthouse.

Understanding the Ball of Yarn


June 2, 2013

I posted the following entry originally at the International Bipolar Foundation a few months ago. I found it to be especially appropriate today so I thought I'd share it here. 

Friday night I directed my original play with an audience of 250 people.  It was the culmination of two months of rehearsals and heaps of creative energy, and it was a success!  Saturday I was interviewed by a British filmmaker about mental illness and its affect on families. I told our story.  THE story that brought me here with you. It was gut-wrenching, yet therapeutic.  But now, I'm exhausted.          

I feel like an unraveled ball of yarn.


Those of us with some form of Bipolar, understand how our minds work for the most part. Some of us are gifted with creativity that drives us, especially during manic times. But for those reading this who do not relate, the creative aspect of Bipolar in some of us may be a bit of a mystery.  While there are countless scientific links between creativity and mental illness, specifically Bipolar, I do not intend to cite them here. Instead, I can only speak from my own life experiences, as I am no expert.

I am a teacher, a job which requires a diverse skill set including: content knowledge, compassion, organization, flexibility, and creativity. Beyond teaching, I also write poetry, nonfiction, fiction, and plays; additionally, I compose music and direct musical theater productions as well as plays. These are all outlets for my creativity. They motivate me in all aspects of my life. Teaching, writing, composing, and directing inspire me to wake up in the morning. They are my oxygen.

We creative types understand how this works. Like a colorful ball of yarn, wrapped haphazardly into the most perfect sphere, our creativity can be unraveled into shape after shape, form after form. Unraveling slowly at times, with care and precision, and at other times, rolling at lightning speed down winding flights of stairs; this technicolor orb reshapes itself again and again to bring life to our darkness. The creativity we express is our lifeblood, taking the form of art, music, literature, poetry, theater.

But there is a time to rewrap the yarn. A time to regroup and rejuvenate. After every creative venture, our yarn is strewn across the carpet, sometimes in knots, sometimes frayed, sometimes appearing as though a litter of kittens has toyed with it for hours. We must take our time to rewind it, to reshape it back into the tightly wrapped form where it will lay waiting for a new inspiration. This rewrapping, regrouping time is crucial. For me, it involves rest, solitude, and self-reflection. For those who love us, who yearn to understand us, they should know that once our yarn is unraveled, our creative energies depleted, we need time to begin again. We need time to rewrap our yarn.

Coming Out from Behind the Shadows


June 1, 2013

Today my son and I were interviewed by British filmmaker @erinamos2013 for the film "Semper Est Sperare" (http://semperestsperare.wordpress.com/) --a film about mental illness and the people it affects across the globe.

While it was a gut-wrenching experience to travel back to 2010 again and retell our story, I believe it was well worth it.  My older son called home from prison during the interview so he was able to be part of the filming too.  I am grateful to have had such a warm, empathetic listener today.  It was therapeutic to say the least.

Then we finished off the day by going out to dinner at a local "British" pub.  To our surprise, our guest confirmed that the pub met his standards!

I look forward to following @erinamos2013's progress as he meets more people who have stories to tell.  And I look forward to the finished product as I am sure it will be one step closer to ending the stigma of mental illness.






Shine a Little Light

This week I will be interviewed by a filmmaker from England for his film "Semper Est Sperare". We are hoping to include both my sons in the interview (older son by phone) if possible too.

The film title (I had to look it up) is Latin for "There is always Hope".  How appropriate for "Stillhopefulmom"?!

It's a feature length documentary film about people all over the world who have Mental Health issues and how they are overcoming them.  Ending stigma is a primary goal of the film.  I'm so honored to be a part of such a powerful project.  Check out the website and find out what it's all about.   http://semperestsperare.wordpress.com/

It was very important for me to have both my sons' blessings and I do.  They are completely supportive of this.  They want people to learn about what we've been through in hopes that other families don't have to endure what we did.

This interview will be the first time I've used anything other than my blog handle: Stillhopefulmom.  The first time a little light will shine on the shadows we've been living in for the last three years.




Mothers Know: An Evening Out with My Mother

I recently spent a couple of days at the beach with my mom.  She is a mother of three and grandmother of five.  I deeply respect her wisdom, especially when it comes to parenting.  (Well, she did a pretty good job with the three of us, anyway.)

We did some shopping, bought shoes, ate out, went to the nail salon.  Typical mother-daughter fare.  So we were out to dinner; we went to a favorite spot of hers that I'd never tried.  I ordered a fancy drink and we were diving into a delicious appetizer.

Then it happened.  A wave of guilt the size of a tsunami.

I was having fun.  I was having fun and I realized it.  How could I possibly have fun while my son sits in a 6 X 9 cell?  I almost dropped my fork.  She asked,  "What's the matter?"

I told her, "Sometimes I catch myself having fun.  I can't really have fun, Mom.  It makes me feel too guilty."

With wise eyes, my mother responded, "You have to take care of you.  You didn't make the choices he made.  You shouldn't serve his sentence with him.  You deserve to be happy."

I sipped from my cocktail, lifted my fork, and said, "I know, Mom.  I know."  And I tried to resume our laughter-filled evening without the guilt that weighed so heavily on my heart.  I know she knew I wasn't going to find that "fun" place again that night.  I know she knew I was feeling guilty.  I know because she's my mom.  And mother's just know.






Birthday Behind Bars

May 18, 2013

My son turns 21 today.  Behind Bars.

He will celebrate with orange-jumpsuited strangers and armed guards.  His birthday meal will be served on a divided tray with plastic utensils. And there will be no cake, nor candles, nor song sung. He will celebrate alone.

The photo above is a picture of my son when he was just under a year old.  He loved to look out of the sliding glass door of our apartment which faced the forest.  He loved to hear the birds sing.  Today he is surrounded by cement walls and barbed wire.  He cannot hear the birds nor see the forest.  Instead, he is trapped inside a living hell filled with screaming inmates banging on bars and fights breaking out randomly all around him.  This is the reality of his life now.

He has been incarcerated since March 28 and it still hasn't completely sunk in.  Not to me.  Especially when I look at these pictures of my baby.  When I think of the days, weeks, months, years that led up to his incarceration, I have to remind myself that he made choices.  He chose not to accept his Bipolar Disorder diagnosis and seek treatment.  He chose to act impulsively, self-medicate with alcohol, and surround himself with people who didn't care about him or perhaps themselves.

I have to remind myself that this baby boy has grown into a man.  And this man has to face the consequences of his actions.  We still are awaiting the sentencing of his charges.  We still don't know what he will need to do to pay his debts to society for his foolish acts.  And everyday his reality is nothing like what he dreamed of staring out that sliding glass window.  There are no birds singing.  There is no forest to view.  Only cement and isolation.

Happy 21st Birthday my beautiful baby boy.  I love you.






To Teachers

May 15, 2013

Today is a typical day.  In 6 minutes, there will be 30 students walking through my door expecting my full attention.

They'll have it.  Because, you see, teaching for me is therapy.

Devoting my complete self to a group of eager students (and some not so eager) provides me so many gifts.  My mind must be on them and their needs.  And in doing this my mind has no time to wander to other things...darker things like the son I have who sits in a cell awaiting sentencing.  I can't be worried about a call from the attorney to discuss strategy or a message on my phone from my therapist confirming my appointment.  I can't be worried about anything but my students. 

They need me.  And that fact inspires me to put aside my worries for just a few hours each day.  And honestly, I need them just as much.

This post goes out to all teachers everywhere.  Embrace your students as they do you.  Remember they put their trust in you everyday.  You must in turn put your trust in them...that they will give you what you need.

These Hands

These handprints in a frame mean more this year than ever.  My son's three year old hands so open to life.  So welcoming to all that lay ahead for him.  Riding a bike, learning to swim, shooting baskets.  Going to school, making the team, meeting a girl.  Going to prom, driving a car, graduating school.

How could I ever know that these hands, these little hands would someday be behind bars?

This Mother's Day, love your babies.  Love your children.  Love your grown up kids.  And grab their hands.  Both of them.  Hold them tight.

This Mother's Day, all I can do is look at this set of handprints.  And remember.



Endurance


May 7, 2013

Today I learned the incredible story of Ernest Shackleton by viewing a film narrated by Kevin Spacey.  It's on You Tube if you want to check it out.

Normally, history is not my thing and certainly would not be a subject of my blog, however, this story affected me so much I wanted to share it with you.  I'll give you the very short version:

In 1915, Shackleton led a team of adventure-seeking men on the ship Endurance trying to cross Antarctica via the South Pole.  During the journey, the ship became trapped in ice.  Most would think all hope was lost.  But not Shackleton.  He took his men onto the ice and they camped there for months waiting for spring when the ice would thaw.

Unfortunately, while they waited, the Endurance wasn't freed by warmer weather.  Instead, the ship was crushed by ice and sank.  Luckily, before the ship was completely engulfed, the men were able to go aboard once more to retrieve their belongings, their sled dogs, and their life boats.  Though their situation appeared dire, they didn't give up.  They remained optimistic and journeyed on.  Their story is one of 635 days of survival.  But let me get to my point.

My point is Endurance.  Shackleton and his crew had incredible endurance.  They would not have ever survived without it.  Six hundred thirty-five days.

Sometimes we need to be reminded that we, too, have endurance.  We may not feel like we do, but it's there.  In fact, sometimes we may feel just like that ship wedged fatefully in that ice and we may just want to give up.

But we mustn't.  No, we mustn't give up hope.  I remain hopeful.  And you must too.

We each have a journey.  Probably not one that involves a ship and the ice of the South Pole, but we have one.  And our endurance will sometimes feel like it's frozen dormant inside of us, but it's there and we must find it. Dig deep for it.  Find it and use it.

Six hundred thirty-five days.  That could be the length of time my son is incarcerated.  Endurance.  I'm digging deep.


An Open Letter to the Hater

May 4, 2013

Dear Hater,

I know who you are.  I know what you're doing to hurt my family and me.  I won't let you continue to do it anymore.

My son is not a monster.  You do not even know him.  Your life is not in the least affected by his choices.  So stop making this about you.

You can only hurt us if I let you.  And I won't let you do it anymore.  I've shed my last tear because of your hatred.  I've spent my last moment worrying about what others think.

I am done with you, hater.  I am done.

~SHM

Who's Doing Time?

April 28, 2013

This marks exactly one month since my son's incarceration.  I went to visit him today.  I'd assume that the majority of you have never been to visit a prisoner in a level 5 correctional institution before, so allow me to set the stage.

First, you must call a week in advance and make an appointment after which they run a full background check on you before you are granted the visit.  Then once the day arrives, it's like an airport security check only more invasive.  You may only bring your keys and your ID (which they take during the visit).  There is a metal detector as well as a guard who scans you, asks you to show your pockets are empty, and has you lift your pant legs up.

Once you are granted admission, you wait.  And wait.  Until all of the visitors that will be seeing a loved one are through the security check.  Then you and the entire party plus a guard enter another room.  And you wait some more.  Until the previous wave of visitors comes down off the elevator and then you finally go upstairs.  On the second floor, after exiting the elevator, there is another short wait; and then finally your party is granted entry to the visiting room.

The photo above was the closest I could find to what the visiting room looks like, at least in our state.  But what you don't see in the photo is the row of inmates, men dressed in white, seated tall, leaning forward, eagerly waiting for their loved ones to come through the door.

Today my son sat behind two thick panes of plexiglass.  We locked eyes the moment I walked through the door and his broad, handsome smile lit up the room for me.  I took my seat at the stool and we both picked up the phone handsets.  He dialed his inmate number and suddenly I was able to hear that familiar voice say, "Hi, Mom."

Since everything we talk about is recorded, we didn't really discuss his case.  Instead we talked about what he does during the day, how he's feeling on his medications, what books he's finished reading, and the fact that he desperately needs a haircut.

Being able to talk to my son for 45 minutes without interruption, and look into my little boy's blue eyes while doing it, is worth all the waiting.  All the security hoops I am made to jump through seem like nothing when I know that for 45 minutes I can see and hear my son talking to me.  Really talking.

It occurred to me today:  I've spoken to my son more in the past month than I have in the last 2 1/2 years.

These visits are gut-wrenching as well as rejuvinating for us both.  The double-paned plexiglass not only keeps him in, but it keeps me out, unable to give my boy a hug, something we both desperately need.

He's not the only one doing time.

"Anything I Can Do..."


April 18, 2013

It's been 3 weeks since my son was arrested.

I count every new event from that day.  Easter was Day #3, for example.  My return to work after Spring Break was Day #10.  My first visit to see him was Day #16.  And so on.  I'm not sure when I'll stop counting.  Thursdays are just hard.

But through all of this I have been supported by amazing people.  Not only my family, and my friends, but people who know my son and me or used to know us.  My Facebook inbox is filled with messages promising prayers and offering kind words.  These messages usually end with "let me know if I can do anything for you".  While this is a standard closing phrase in messages of sympathy, and most people would just see it as such and leave it at that, I actually take people up on it.

Here's what I ask of them:

"If you hear anyone talking about my son and what has happened, be sure to tell them that he is a good boy and he just made a terrible mistake.  He is not a criminal; he's mentally ill, but he's now seeking treatment."

I hope that it's not too much to ask of these kind souls who really just want to make me feel better.  I hope I'm not overstepping my bounds by actually asking something of them in return.  But I don't regret my requests.  Hey, they asked if there was anything they can do.  And yes.  Yes, there is.


Swimming Lessons

April 13, 2013
It's been two weeks since my son was incarcerated.  Since then, we've learned to tread water in the judicial system of our state.  We've hired an attorney, our life raft, and we've discovered that the word "strict" doesn't cover what a level 5 correctional institution is.

Once we learned that we had to have phone accounts with at least $25 deposited in them for him to call us, his dad and I have each received several calls.  It seems our son is learning to swim in this new murky water too.

And once I learned that he had to buy his own socks, deodorant, and the like, I followed the directions about depositing money into his commissary account.  This "order" gets filled weekly, every Sunday.  Last Sunday, there was a mistake with his order. So he's been handwashing his one pair of socks for the past 14 days.  He's written us letters that he cannot mail because his commissary order for stamps and envelopes was not filled.
He's not permitted to be mailed anything but letters and money orders (for the commissary).  Ironic?  And he's lost 15 pounds.

While all of this may sound like he's miserable, and he most likely is, he maintains a remarkably hopeful attitude when he calls me.  He says "I love you" at least five times per call.  In fact, in the past 14 days, I've spoken more to my son than I have in the past year.

His sunny mood when he calls reminds me of all the beautiful summer days we spent at the beach over the years.  He loved to body surf.  He didn't use a boogie board or any sort of raft.  He wanted to do it alone.  And he was good at it.  Thank God for that.  Because now he is alone.  Swimming in murky water facing waves that may engulf him or that may bring him safely to shore.  He doesn't know and neither do we.

Hope Behind Bars

April 4, 2013
My 20 year old son is behind bars.  The charges are serious. Very serious.  It's been a week since our world was turned upside down with his arrest.  In the past week I have learned a few things:

First, after our experience, I would say to any new parent, "Along with teaching your children not to talk to strangers and always look both ways before crossing the street, teach them that if they ever get arrested, ask for an attorney and don't say a word."

I've also learned a lot about the crucial part a good attorney plays in the process.  Whether innocent or guilty, a good attorney can help guide the accused and the family through the jungles of the court system.  It is well worth the money.

I've learned that no matter what your child is accused of doing, it is still your child and the sound of your child's voice on the other end of the phone is one of the most beautiful sounds one can hear in times like these.  Even with a limit of 15 minutes and the fear of every word being recorded, hearing his voice saying, "I love you Mom" has been the nourishment I've needed to survive the last several days.

I've learned that the entire situation is dynamic, everchanging.  I've learned not to take anything at face value as circumstances won't remain as they are. Appointments may be rescheduled, rules may not apply, court dates may be changed, and waters may become more muddied.  The "case" will become uglier before it gets resolved.  I've learned to trust our attorney with these fluctuations and focus only on our family's needs.

And I've learned, that a 16 year old younger brother can be the most rational one of us all.  In his words, "Well, it was bound to happen, Mom."

Now we wait for the formal charges to be brought to the courts.  We will soon learn what the future may hold for him.  In the meantime, I have one bit of good news.  My son revealed to the prison physician that he was bipolar and hadn't been on his meds for a long time and he asked to be medicated again.  They complied.  They only gave him an antidepressant, but it's a start.

They say each person in trouble must "hit bottom" and they have to realize for themselves that they need help.  I think behind these bars, my son finally realized that he couldn't deny his mental illness anymore.  Asking for medication was a remarkable step for him to make on his own.  Obviously, treatment for bipolar is more than taking a pill, but it is a step in the right direction.  He knows he needs psychological help.  And he's asking for it.

Behind bars there may be hope.






A Mother Knows

March 29, 2013
Yesterday what I have feared would happen actually did.  My son was arrested.  He has six charges against him.  While I won't discuss the actual case, I will say that these charges are incredibly serious and will likely lead to his incarceration.

Needless to say, I am devastated.  This is my twenty year old son.  He is in prison charged with serious crimes.  He may remain there for a long time.  I am still wrapping my head around this concept.  Thankfully, the actions he took did not involve hurting himself or anyone else.  It is a small consolation but I can at least be thankful for something.

And I am also relieved in some strange way.  I have been saying this all along.  He has been a ticking time bomb for years.  Few people believed me.  I was told, "He's just a kid.  He'll grow out of it."  But I knew there was something seriously wrong.  Very few listened.  And nothing could be done.

Until now.

So I have been proven right.  Everything I have said about his instability, his poor judgment, his volitile behavior, his impulsivity, his alchohol/drug abuse, all of it...I was right.  A mother knows.

How I wish I'd been wrong.

Hopefully, once this nightmare is over, he will finally receive the treatment he so desperately needs.  Hopefully, there will be some good that comes of this horrible event.  Hopefully, someday we may all find some peace and he may have a happy life.  One that he deserves.


The Rock

March 22, 2013
Since my last posting, a lot has transpired.  I've directed a very successful play and my younger son has performed in another one.  Life has been hectic but mostly good.

Unfortunately, not all good.

My older son was told to leave the place he'd been living (with family).  They changed the locks.  The reason:  he'd stolen a credit card from them and used it a few times.  Luckily, the amount wasn't terribly high, but that doesn't matter.  The trust was gone.  Though I wasn't there, I'm told he was very remorseful and promised to pay back all that was owed.  

When given this news, at first, I had that same old familiar feeling of devastation, like I'd been punched in the gut by a heavyweight champion.

But then, surprisingly, something changed inside me.  Instead of falling apart myself, I was able to remain calm, even helpful. I actually consoled the person to whom my son had broken trust and I explained that this was the way his illness is.  This person didn't really understand what Bipolar was until this happened.  Our conversation became more about what Bipolar people choose to do when untreated and less about my son's transgression.  I feel like I actually informed this person and it was understood... moreover, it was accepted.  Something I never thought would happen.

I don't know where my son is at this point.  He randomly posts things on Facebook (yes, we are still "Friends" on Facebook).  But where he's sleeping I do not know.

What I do know is that I am stronger than I thought.  I didn't crumble when I heard about my son's latest episode.  I was the rock that held things together this time.


I was able to use it as a teachable moment for someone who had yet to acknowledge that my son indeed has a mental illness.  While I am still worried for my son's welfare, I do not lie awake each night in terror.  Do I think about him everyday?  Absolutely.  But do I let his choices affect my life with my partner and younger son? No. No, I don't.


Tell Them You Love Them Especially When They Don't Want to Hear It


February 19, 2013

The following is an edited version of a letter I wrote to my 20 year old Bipolar son last summer.  He'd moved out of my house Dec. 31, 2010. If you've read my other posts, you know the troubles he's had, we've had.  But I post this letter now because it may benefit you, Dear Reader.  If you need to reach out to someone you love who is troubled, DO IT NOW.  Let them know you love them especially when they don't want to hear it.

July 14, 2012

Dear XXXX,

I suppose you see that I have decided to write you a letter. Two reasons: first, because when I text or call you, you rarely reply or answer. And second, because this will give me the opportunity to share with you some of the things that have been on my mind for quite some time.

The most important message I'd like to convey to you today is that I love you. Yes, I say that to you and I text it to you and you reply the same to me. But, seriously take a moment and think about it: I. Love. You. What that means is that I will never forsake you. I will never turn my back on you no matter what you do or say or don't do or don't say. No matter what. I. Love. You. A mother's love for her children is the most unique and selfless kind there is. And in my case, it is my love for you that is the deepest rooted love I carry in my heart. Here is a poem I think that explains my feelings toward you. Since we both love poetry, I think it's appropriate to share with you:

i carry your heart—ee cummings
i carry your heart with me(i carry it in
my heart)i am never without it(anywhere
i go you go,my dear;and whatever is done
by only me is your doing,my darling)

i fear
no fate(for you are my fate,my sweet)i want
no world(for beautiful you are my world,my true)
and it's you are whatever a moon has always meant
and whatever a sun will always sing is you

here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud
and the sky of the sky of a tree called life;which grows
higher than soul can hope or mind can hide)
and this is the wonder that's keeping the stars apart

i carry your heart(i carry it in my heart)

So, my Son, as my first born son you hold a very, very dear place in my heart. Carrying you for 9 months, giving birth to you, nurturing you the best I could is only the beginning of the love I have for you. As a young mother, I know I made mistakes. Lots of them. But one thing I know without hesitation is that I will always love you. It's just like that book I used to read to you about a mother's love for her son: how she crawled across the floor to rock him back and forth, back and forth and while she rocked him she sang:
I'll love you forever.
I'll like you for always.
As long as I'm living
my baby you'll be.

Now that you know the most paramount reason for my writing to you, let me move on to some other thoughts I've been having about you...and they are in no special order.

I feel guilty when I think about how things are for you right now. About how school hasn't really worked out and about how you don't have a car and perhaps not even a job. In all this misfortune, I have never given up hope for you. But I feel guilty when I think that's what you think. Basically, I worry that you think I've abandoned you. And I don't ever want you to think that.

I've been in therapy for a while now and I've been diagnosed Bipolar II. During my sessions with my counselor, I express to her how much I miss “the old XXXX” and how much I wish I could have done something to alter things. She tells me over and over that you have made choices that have led you to where you are. She says I need to remember that. And I do. But I can't help to feel guilty too. (Perhaps it's that old Catholic thing.) In any case, just know that I've been “battling my demons” so to speak over the last year and a half.

In getting diagnosed, I've begun medication too. This has helped moderate my emotions tremendously. I can't tell you how helpful it has been to learn more about Bipolar II and why I feel the way I feel sometimes. And to know that there are other people who feel this way too. And there is medication that helps. After some trial and error I've found the correct dosage for me. I tell you this because I want you to know everything, Son. I want you to know that I've been battling things too.

OK I just re-read that last paragraph and as a writing teacher, I'm horrified. The lack of organization is horrific. But I mean every word and I'm not revising it to make it perfect because I'm not perfect. I'm just your mom. And I miss you. And I love you. And I want to have a relationship with you again.

I'd love to see you on a regular basis. I'd love to talk to you weekly, daily, whatever suits you. You know I keep up with most of what's going on with you, though I'm sure I don't know everything. I respect your privacy. But I want to talk to you again. And I want to be a part of your life again.

Now this wouldn't be complete if I didn't mention the next subject, so brace yourself:

Your Future.

I'm not going to harp on you about what I think you should do. I'm not even going to list the ideas I've had (both old and new) regarding this topic. Instead I'm only going to say that I'd like to help you get Your Future started. I know you're scared. I know it's terrifying to be “a grown up”. But it's also quite liberating. And you deserve that.

So I'll come to a close with just three little words: I. Love. You. If you gain nothing else from this letter, I hope that I have convinced you of that.

Love Always,

Mom

Hypomania: The Catalog Sweater That Doesn't Quite Fit


February 16, 2013

Those of us who have battled Bipolar II long enough know the signs of hypomania. And since a hypomanic episode happens so rarely compared with depression, when one does occur, it feels like receiving a beautifully gift-wrapped present. We unwrap it with frenzied anticipation, knowing the gift comes with an expiration date. Just what we've hoped for, just what we've wanted, but it may not be exactly what we need, like a sweater ordered from a catalog that doesn't fit quite right. We love the looks and how it feels, but it just doesn't match the rest of our emotional wardrobe. The gift of hypomania, enjoyed while it lasts, ultimately must be returned.

For me, the gift of hypomania feels like electricity fluttering through me, like an endless tickle with a feather just below the surface of my skin. When hypomanic, I have no desire for sleep or food. My eyes are opened wider and my senses feel heightened. Remarkably jovial and talkative, talkative to the point of interrupting sometimes, I feel like I need to comment on everything. Those closest to me say they like me hypomanic, but they are more than ready for me to calm down. Hypomania creates a caricature of myself. Invincible. Bigger than life.

One benefit of hypomania for me is productivity. Once my boundless energy is bridled, I can tackle just about any project. At work, my desk is organized, papers are filed, and exciting new lessons are developed. I never slow down and neither do my students. For middle schoolers, a hypomanic teacher is quite a treat. I talk a mile a minute, cracking jokes and pacing about the room, and we bounce from one activity to the next. Not many papers get graded, and tangential thoughts may invade my lessons, but ultimately, my hypomania, in small doses, benefits my students. Back to School Parent Night, while hypomanic, is a bit dangerous, however. One year, while flying high, I gave a multimedia presentation to parents about my course. I hoped the buzz I was feeling translated to teacher enthusiasm rather than wild-eyed crazy. Luckily, there was no fall out from that evening. No parent complaints, but I realize now that there could have been.

At home, my productivity may take the form of organizing every closet in the house, or cleaning out all of the kitchen cabinets. My family finds this helpful yet annoying, since I see no reason why everyone can't unload all of their clothes from their dressers and get organized too. My hypomania once even inspired me to paint my office. Now that was a mistake. Not only did I choose a yellow the shade of an egg yolk, I painted with such unfocused energy and lack of precision that once completed, it looked as though the sun crashed into the corner of my house and splattered all over my office walls. Needless to say, I had to hire my ex-husband to come and repaint it. Talk about humiliating.

One of the most prominent symptoms of my hypomania is this incredible urge to create something and follow it through to completion to the exclusion of anything else. For example, I may sit at the piano for hours composing a song, and until I am satisfied that it's finished, I will not get up unless I am forced to by the demands of family or work. Even then, while begrudgingly meeting my commitments, I feel a magnetic force pulling me back to the piano. It takes all my strength to fight it. Confession: there have been days where I have gone to work and instead of going straight to my classroom to prepare for the day, I've snuck into the music room and spent my half hour prep time playing the piano before the music teacher arrives. Being creative becomes my primary focus. Then, on those same music mania days, I will return to the music room during my free period and see if the piano is available. Again, I'll play until I have to return to my own class.

Being hypomanic has its benefits but it certainly has its downsides too. The biggest negative hypomania brings is the dread of its inevitable end. We know it won't last forever, but we want it to. We want to feel that electric energy and invincibility just one day more. The dark days of depression glare us in the face too often. We don't want to look at them again. We are willing to risk just about anything to keep that hypomanic euphoria, even if our symptoms lead us to do dangerous or careless things like shop too much or drive distracted or worse. We crave that sense of elation so much we are willing to risk it. Nothing bad will happen to us, right? We are invincible!

But eventually, we know the gift of hypomania must be put back into the box and returned and our days must turn back to the darkness that is depression. We'll wait patiently for the next gift-wrapped package of hypomania, while flipping through the catalog and dreaming of that perfect sweater.

(originally posted February 11, 2013 at internationalbipolarfoundation.org.)

I Won't Hold My Breath

When you call someone and you go straight to voice mail the first time, you don't take it personally.  You think, "They're probably busy.  They'll call back."

But when it happens 7 straight days, you realize there's something more to it.  And when it's your 20 year old bipolar son, it's no surprise.

Calling my son is like diving off a cliff.  


With the first monotonous ring, my hope is suspended. And as I'm about to break through the surface, I cringe, fearing the impact.

With the next monotonous ring, I'm twenty feet under murky water with my eyes tightly shut, holding my breath, knowing I can't hold it forever.

Then with the next monotonous ring, I slowly rise to the surface.  It looks like a glimmer of blurry sunlight shimmering up above me, but I know it's only an illusion.

With the final monotonous rings I'm becoming more and more certain he won't answer.

Damn that caller ID.

Life in the Key of Bipolar

February 3, 2013

Conversations with myself at hypomanic times often go something like this.

Me:  Stop playing piano and go get your work done.

Other me:  I am really on a roll.  I've got to keep playing.  And I need to play it perfectly.  I can't stop now.

Me:  You need to go make dinner, pay the bills, be a grown up.  Stop playing.

Other me:  Shut up.

Me:  Fine.  Whatever.

You see, I can't stop playing the piano when I'm creating a new song.  If I could, I would sit there and play the same new song without stopping all day long.  But I can't do that.  I have to force myself to stop.  I know I have a job, I have household responsibilities, and of course, I have a son to care for and spend time with.  But there is this magnetic force always drawing me back to the keys.  Calling me.  The blossoming melody singing inside my head.  I ignore it as much as I can.  But it nags at me.  I feel like if I don't finish a new song, I can't concentrate on anything else.

Other Me:  End this blog post and go play the piano.

Me:  This blog post isn't finished yet.  Proofread, revise, perfect it.

Other me:  Stop being such a grown up.  It's piano time.

Me:  Fine.  Whatever.


Prescription: Down Time in Foreign Tongues

January 29, 2013

The other day my son had a voice recital.  I was actually dreading it because I thought it would be three hours hearing other people's kids for just three minutes of hearing my own.  To top it off, the songs would be sung in foreign languages.  Who needs that on a Sunday afternoon?  Especially when I had papers to grade and shopping to do.

But I went anyway.  I went to hear my son and I went to support his friends.  And I went because I knew I should.

Thankfully, I went because what I discovered was that sitting there listening to twenty four talented voices gave me a gift I never expected.  That recital forced me to stop and listen.  Be in the moment.  Take in what's around me and let go of everything else.

I was forced to stop.  To listen.  To be still.  To let go.

I needed that.  It was like a forced time out.  And I left there different.  Proud, of course, of my son's performance, but also more at peace.  My nerves were more settled, my anxiety was down, my stress nearly absent from my mind.  All because of a voice recital I dreaded...who knew?

So what will make you stop?

And listen?

And be still?


What will bring you a forced time out?  What will bring you peace?




Just Lucky, I Guess

January 21, 2013

People from work or from my community who hear my story often ask me questions like, "How did you make it through?"

"How did you not fall apart?"  

"You seemed fine even though you were going through so much at home.  How did you not let it affect you?"

My response is usually something like, "I don't know.  Just lucky, I guess."  

But in all honesty, the fact that I was able to maintain my poise at work and continue volunteering with my younger son at our local community theater actually embarrasses me. 

About a year after my older son left, I talked to a psychiatrist (referred to me by my therapist).  Among other topics, this ability to keep going through anything came up because it concerned me.  I worried that I was flawed deeply. But this trait which one may call "resilience" is actually something he used to help diagnose my condition: Bipolar II.

Apparently, we Bipolar IIs are able to "keep going" through lots of emotional stress.  We can drive right through the rain, so to speak.  For me, it felt like if I let myself cry, I may never stop.  Having so much stress at home was enough.  I refused to let it interfere with my life outside of home.  I just wouldn't let it.

But yet, it did.

While my employer would never have suspected anything was wrong, I felt the stress.  The pain. It lay dormant underneath my skin.  I always knew it was there waiting for me. It was a conscious decision to not let it eat me alive.  I felt I had to continue going for my younger son's sake, if nothing else.  What I wanted to do was fold up into a ball and rock on the floor.  To go away to some scenic, peaceful therapy center somewhere.  To check out on some heavy meds.  To acknowledge the pain somehow.  

But I held it together through it all.

So when I finally let myself feel...it all came pouring out.

In fact, one of the first times I really let it all out was when I wrote my first blog entry just a few weeks ago.  I actually relived that horrible experience completely and let myself feel all of it.  I let myself acknowledge the pain.  And it hurt.  A lot.

But I'm healing.

My therapist and my psychiatrist are both very proud of my progress.  The "Sacred House" helps a great deal.  So does the fact that I'm seeking help with therapy and medication.  I try to maintain a regular sleep routine and I exercise often.  I'm finally taking care of myself and letting myself feel again.  I'm also very lucky to be in a loving relationship with a supportive man who doesn't judge me.  He accepts me, flaws and all. So, thankfully, I am healing...

But I often worry that another tragic experience would just tip me right over.  Set me off.  Knock me out for good. 
Then again, no, I don't think it would.  
I am resilient.  
And I'm just lucky, I guess.





Hindsight

January 16, 2013

When my second son was born, I thought there was something wrong with him.

I remember going out to dinner with my parents one night when he was about 8 or 9 months old.  I was sitting there with him perched upon my lap, his healthy rolls of babyhood peeking out of his Osh Kosh overalls.

"Mom, I think he's, I think he's...simple.  I mean look at him.  He just sits here.  He's actually letting me eat my dinner."

My mom laughed and assured me that he wasn't simple.  He was just a happy baby.  She told me he was fine, but I wasn't so sure.

All I had to compare him to was his four and a half year old brother, who, at that dinner outing, was playing "try to touch everything on the table".  Even though we'd brought a bag filled with books, action figures, crayons and coloring books, he insisted on the stimulation of new exciting silverware and glasses, salt and pepper shakers, napkins and ketchup bottles.  My husband and I ended that evening as we usually did when out at a restaurant...one of us took him out for a walk, while the other got to finish the meal.

My older son's babyhood seemed normal enough, or at least we thought it was at the time. We knew he was coordinated since he was running, not walking, by the time he was 9 1/2 months old.  He could throw a ball with dead aim at your face (his preferred target) at a little over one year old, and by two he was hitting a ball off of a T like a pro.  And he spoke clearly, articulately, thoughtfully very early on.  Developmentally, he was on the money.  In fact, with most developmental stages, he was ahead according to the baby books.

Basically, we thought he was brilliant.

Hindsight is what it is.  Looking back I see his early years were not typical.

Like the fact that to fall asleep, most nights we had to take him in the car for a ride. But taking him out of the car seat risked waking him and doing it all over again.  This lasted until he was almost three years old.

Like the fact that he didn't sleep through the night until he was nearly four.

Like the fact that he didn't sit still long enough for us to read him a book until he was in pre-school.

Like the fact that his temper tantrums would last so long that he would physically exhaust us.  These remained routine well into his school-age years.

Like the fact that we had to hide scissors from him because he cut every fabric item we had in our house:  curtains, clothes, bedding, you name it, he cut it.  Scissors were just fascinating to him.  This was at about age six or seven.  An age he should have known better.


But he exhibited many signs of intelligence as well as an amazing athletic aptitude.  Despite the fact that to be read a book he had to be moving around in his room and listening, looking at pictures on the run, he learned to read at five years old.    His hand eye coordination as well as his large motor skills were very well developed.  He began to swim competitively at age five and at age six he won the State Championship for his age group!

So, in comparison, the new baby seemed, well, simple.  He wasn't as active.  He didn't roll over as soon or walk as soon or talk as soon as his older brother.  He had little interest in athletics and hated to swim.  By comparison, he seemed less gifted, less talented, less extreme.

As it turns out, both boys are very intelligent, though the older one didn't excel academically like his younger brother does.  The older boy swam competitively and played basketball until he tore his ACL in high school and developed a psychological aversion to competitive sports.  The younger one, never much of an athlete, became an actor on stage and screen at the age of eleven.  He's appeared in television and film, though he prefers to perform in local theater productions.  He is what they call a triple threat:  a singer, actor, and dancer.

Both boys have AD/HD.  The younger one has never needed school acommodations, but the older one needed them from age six through high school.  He never finished a semester of college, though he tried twice.

Oh, and the older one.  He's got Bipolar Disorder.

Looking back on things now, it makes sense.  The temper tantrums, the impulsivity, the irritability, the destructive behaviors.  The extremes.  Looking back, I think he showed symptoms of bipolar as an infant.  Of course, hindsight is what it is.

And what I thought was a simple baby, was really just a baby without the raging waters of bipolar disorder swimming through his veins.

If I had only known what we were dealing with, maybe I could have altered what ultimately happened with my older boy.  But how could I have known?





Finding Solace in Song

January 9, 2013

I write music and lyrics.  It's therapy for me.  Here are two songs that I've written for my son.  I have videotaped a part of the first song.



A Letter to the Universe

Hey it’s me 
trying to sleep the whole night through
Well you see 
dying to see his eyes so blue

I’ve been trying not to think about him
trying not to cry
I’ve been trying not to blame myself 
but then why shouldn’t I?
I could hold his hand much tighter
I could sing him one more song
I could paint his world much brighter
give him reason to go on

so I’m calling out to you
can I try again?
Try again
let me...try again
I know...I know it’s been a while
I..I really miss his smile

Hey it’s me
trying to sleep the whole night through
Well you see 
dying inside, well wouldn’t you?

All I do is think about him
All I do is cry
All I do is blame myself 
but then why shouldn’t I?
Didn’t hold his hand near tight enough
Didn’t see he was afraid
Didn’t paint his world near bright enough
And I let him slip away
for my baby 
can I try again
Try again
let me
Try again
I know...I know it’s been a while
Oh...I really need his smile



Still Here

Just the other day, while driving home
I saw you on the street, but I looked away
in that winter coat I bought last year
your eyes they still looked cold, just like that day

and I wonder do you ever think of me?
where’s that little boy you used to be?
is he gone for good?
‘cause I haven’t given up on you
I haven’t seen those eyes so blue
are they gone for good?
‘cause I’m still here
‘cause I’m still here

In this quiet house, your empty room
cobweb reminders nagging me
if I’d only let those shadows die
your silence; your eyes that didn’t cry

and I wonder do you ever think of me?
are you still that boy you used to be?
don’t be gone for good
‘cause I haven’t given up on you
I want to see those eyes so blue
don’t be gone for good
no I haven’t given up on you
just let me see those eyes so blue
I’ll be here for good
yes, I’m still here
I’m still here
yes, I’m still here